What’s that you say? It’s music to my ears.

I sat on the deck enjoying the last of the day’s warmth while I sipped a glass of wine. The lake was calm with small ripples and was quiet with the exception of the sounds of duck feet skittering across the surface as they landed.

I enjoyed the solitude until it ended.

My reverie was disturbed by the very abrupt and loud sound of a saw starting up. It was not a chain shaw, but one of those with the round blades. It fired up and then went off. Then I heard an aged woman’s accented voice:

“Why did you turn it on already, Carlo?” she asked.

It was the female half of the elderly Italian couple who live across the lake.

“Just to see if it was working.” Carlo replied.

“Oh, I see. Well I wasn’t ready for your help yet. You’ve come out too soon.”

“Well you said you wanted to get started on it,” he replied.

They bantered back and forth and I could hear every word. It is not uncommon for me to hear one of the lake neighborhood’s founding couples conversing. I’m told they are in their 80’s, and both are hard of hearing. And because they also had the saw on, they were speaking even louder.

I heard her give him heck for pulling at the boards in a way she clearly deemed incorrect.

“We need to work together!” she chastised but he just mumbled and fired up the saw while she started to say something else.

Next I heard her telling him to be careful of his knee and he barked he was fine and was always careful. Back and forth it went until she reprimanded him further:

“I don’t want to hear you swear like that.”

“I don’t swear!” he shot back.

“Well, what do you call it when you say those words then?” she asked.

“Which words?”

“Well I don’t want to REPEAT them” she barked.

“Then he said something in Italian which I didn’t catch but I assume was something like ‘you’re making it up’, (but probably less polite,) because then she fired back in a louder angry voice,

“Bastard. That’s what you said.”

“Oh. Did I? Ok, yes, well…” and he trailed off.

They continued to saw and move wood and every time he stopped, she repeated that he had made the task that much more difficult because he had come out before she was ready.

“I didn’t call you yet” she said. “But you came out on your own, so whose fault is that?!”

The saw went on and he grumbled a reply I couldn’t discern. (The saw paused…)

“Ok! Well don’t tell me! That’s why I didn’t want you to come out until I called you….” (The saw switched on again…)

“You didn’t wait for me to call you and that just makes it harder for both of us. It seems like I’m not helping because I have to do this stuff over here and so I can’t be over there holding the wood for you. And it’s dangerous. You could hurt your knee.”

“I’m not going to hurt my knee!” He retorted. “I’m being careful. I don’t need you to hold it.”

After about the fourth time of her tirade about him having come out before she was ready, he relented, “Ok, My Love. Ok.”

The ‘My Love’ caught me off guard and struck me as a sweet capitulation. But the tender moment didn’t last.

I suddenly heard the sound of a massive crash and a barrage of angry sounding words in Italian from both of them and then I could hear her tell him to just go inside and let her do it. The sound of him stomping inside was punctuated by the sound of a door slamming.

It went suddenly quiet and I was grateful because until that point I had been failing miserably at ignoring them.

I thought back to a scene in a tv show I had just seen which depicted a family argument around the breakfast table, and the father was deaf so as the mother and teenage kids yelled back and forth at each other, they also aggressively signed.

I chuckled because it was comical to see three hearing people simultaneously yelling and signing while the deaf father chose to stay hidden behind his newspaper. And even though the father wasn’t ‘listening’ as he wasn’t looking at them signing, they all continued as was clearly their habit to always sign and speak simultaneously. I thought that was so amazing, and it also dawned on me that deaf people can entirely ignore someone simply by not looking at them.

I haven’t known any deaf people and I can’t imagine what it would be like to live in continual silence. I wouldn’t want to give up any of my senses but the more I contemplate it, the more I value my hearing.

If I lost my hearing, not only would I miss the dulcet tones of my Italian neighbors conversing (wink, wink), but I would miss all the actual JOYS that come in the form of sounds. If I could never smell bread baking, or heavenly scented flowers, or the warm sweet head of a baby it would be an immense loss, but to lose the ability to hear birdsong and joy and laughter, and MUSIC?!? Losing music would be deeply life affecting for me.

I’m not a musician or any kind of an audiophile but I am madly passionate about music. I think listening to music is one of my biggest and certainly healthiest coping strategies, even if it occasionally is to the annoyance of others.

Now that I live outside of town (on a small lake in the country), I have a ‘drive to town’ which I say to myself in a Texan accent because it seems fitting in that context and because I love accents…which is something else I wouldn’t get to enjoy if I couldn’t hear, but I digress…

Anyway, my drive to town is on a winding pretty country road and I always listen to music. Like so many people, I love listening to music in the car because it’s an amazing acoustic chamber.

The other day I was driving home and when I turned off the highway, I had to stop at a light. A truck stopped beside me and I had the feeling of being observed. I had the top down, the music was on, and my son’s dog sat in the passenger seat looking generally pleased with the state of affairs. The truck beside me crept forward and the driver leaned out his open window and said,

“That’s a great song. It sure looks a lot more fun in your car, my son thinks.” (The song was Iko Iko featuring Small Jam.)

And it’s so true that music goes so far to create an environment. Music can really make a movie and we are all familiar with those montage scenes when clips of usually some kind of work or activity is set to uplifting music. The Top Gun, Footloose and Flashdance movies all used music to such amazing effect that so many of us see scenes from those movies in our heads when we hear the music from those films.

Music makes most things better….it sets the tone in almost any scenario, and can be inspiring when exercising or doing many kinds of work. And as many scenarios as there are made better by music, there are kinds of music from which to choose.

I love music with good bass and when I was pregnant I used to play it a little louder than usual in my car to try and maximize my enjoyment before I had a baby and thought I should no longer do that. I would love the feeling of the thumping stereo reverberating through my body.

I think, however, all I did was instil a deep love of music in all three of them in utero. They are all crazy about music and two of them write their own and sing.

Musical enjoyment is very personal though and one person’s taste is not for everyone and as innocuous as it hopefully usually is, sometimes it can go wrong.

A few years ago I had a studio in a building that came with an underground parking spot. I would pull into the down ramp and have to wait 30 seconds or so until the gate opened. I never sped down the ramp and was surprised one day to see in my mirrors, the building manager running down the ramp behind me.

My car had darkened windows so she couldn’t see inside. I parked and got out as she ran up.

“CARTER!?! That was YOU?!?”

‘Uh, that was me who what?’, I thought, but said,

“That was me driving in? Yes.” Had I run over a basket of kittens without realizing? I had no idea what the problem was.

“OH!!! So that was YOU playing that music?!?!”…she asked sounding incredulous.

“Ummm, Yes….” and at this point it dawned on me that maybe my music had been a bit loud.

“Oh Carter! It’s SO LOUD!!!! I had NO idea that was YOU!?!”, she continued, her doubt still palpable:

“When you stop at the key pad to buzz the gate open, the bass in your music rattles ALL the windows on the WHOLE FIRST LEVEL!!!!! They ALL shake and rattle!!!!! I MUST ask you to turn it off when you come and go. Someone told me it was a darkened out, dark colored Land Rover so I gave the lovely young man in 603 a lecture but his car is light green and that explains why he was totally confused. I never imagined it could have been YOU!?!”

Hahaha. I found that whole scenario hilarious. It really appealed to my sense of humor that I am clearly regarded as such a goodie two shoes that even the cranky building manager couldn’t believe I could behave ‘so badly’. And for that, I’m a little mortified, but mostly proud. When I relayed the story to the kids, Georgia giggled and said,

“Wow, Mom, you are such a baddie…”

Thankfully, I’ve mostly moved on from the gangster rap vibe. This is relief to all, not just my kids, and is especially good now that I’ve got a car with no roof. Now I usually have something more sedate playing.

But a few days ago, on the way to dance class, I was driving and went past a lady weeding at the side of the road, and as I drove by, she shook her hands in the classic ‘you-crazy-kids fist shaking hand gesture’ and as I looked in the rear view mirror she covered her ears with her hands and made a face.

HAHAAAAAA. I had to laugh again. It has been a number of years since my last incident of getting ‘in trouble’ for having my music on too loudly, and those years have been some hard ones so I decided to take it as a good sign.

I was further amused by the fact that I was listening to a song (with fantastic lyrics as an aside) called “Bad Child”. (Video here.)

So you can be a bad child at any age but I guess I should turn my music down a bit. I know the saying ‘Dance like nobody’s watching’, but i guess that’s different than ‘Listen to music as if no one can hear it’.

As I pondered this. I heard Carlo’s voice again. I looked across the lake and could see him standing at their bedroom window, with it open and him leaning sightly out. His wife was still below working on the job of organizing the wood.

“Coco!” he called.

No answer…Just the sounds of wood planks getting shifted around.

“COCO!”

“Are you calling me?” she called out at the same time so neither could hear the other. Then she added,

“I can’t hear you,” at the same time he called her a third time and added

“Can you hear me…?

Silence. Then he tried again: “COCO-OHHHHHH’

Then I heard her voice in a very slow and very grumpy tone reply:

“WHAT……DO……YOU……NEED?…….I……CANNOT……HEAR…..YOU….”

“I need the Detol, Coco….Where is the DETOL?…”

Then her reply:

“The WHAT?!?!………I can’t HEARRRRR you!!!!!…..OK…..I’M…..COMING…..”

(And then she lowered her voice, presumably to a level she thought he couldn’t detect, but still loud enough so I could hear her grumbling about how if he had just waited to come out when she was ready then it would have been SO much easier for both of them.)

She disappeared into the house and wasn’t gone long before she reemerged and I heard a third voice enter…(from stage right). It was Kenn, another neighbour, who lives directly across the lake from me.

“Hi Doris. Just thought I would pop over and see if you could use a little help.”

“Oh, Kenn!….Hello! Well that is very kind. We were just trying to tidy up the wood pile here but Carlo came out before….”

But Kenn cut her off:

“Before you were ready?…. Yahhhh. So we gathered….”

HAHAHAAAAAAA omigosh, nicely played, Kenn, nicely played.

I couldn’t help but chuckle watching this unfold because as side-by-side neighbors Kenn and ‘Coco’ and Carlo couldn’t see each other, but from across the tiny lake I could see and HEAR them both.

I just had to smile and find the amusement in the humanity of it all.

So three cheers for our ears! May we all be thankful to hear!!!…..Even things which we may prefer not to!

Turning wrongs into ‘writes’…

I have just finished David Sedaris’ class, entitled ‘Story Telling and Humor’ and it is definitely one of my favorite writing courses. I have enjoyed his books immensely and find his sense of humor resonates with me, in similar ways Jenny Lawson’s does.

In his conclusion, David Sedaris says:

“I divide the world into two groups of people. There are those who pay someone to listen to their problems. And there are those who get paid telling people their problems. I am very fortunate to be in group number 2, and there is a spot here waiting for you, when you are ready. .. I can’t wait to hear about everything that’s gone wrong in your life.” (Masterclass App: David Sedaris, Lesson 13.)

I giggled. David Sedaris’ idea of wanting to hear everything that’s gone wrong in life is such a refreshing and inspiring starting point for writing. I think what I respect (and enjoy) most about both David Sedaris and Jenny Lawson is that they both write about all the weird and wonderful and frustrating and disturbing and confusing things that happen in their lives, and they make me think, feel and LAUGH while they do it.

Those who know me have heard me go on about how much I love Jenny Lawson and I just can’t say enough how she impresses me. She is the perfect example showing that it’s not what happens to you in life, but your attitude toward it. Jenny Lawson battles a number of medical issues that on their own are debilitating, and she handles multiple SO deftly, finding the humour all the while. I’ve never managed to connect with her personally but I hope she knows how many of us she TRULY inspires.

Both Jenny Lawson and David Sedaris write not just with wit, but with almost unfiltered honesty. Truthfulness is natural for me but I struggle with knowing where the line exists for over-sharing. I have also been told that given I’m a very private person, it seems an unintelligible choice for me to even have a blog in the first place. I get that. And I wrestle with it too. But like a dog who needs to chase a ball, or a clown who needs to try to make people laugh, I feel compelled to write.

What’s more is that despite not having a large group of subscribers, I keep getting messages to encourage me to continue to share. I’ve always been a quality over quantity lady so even if each post resonates with just ONE other person, I feel it will have been worthwhile.

I feel it’s also a responsibility for me to walk the walk and talk the talk. I have 3 teenagers I try to encourage continually to follow their BLISS….to follow their PASSION. I believe SO strongly that when you do what you love, the rest will follow….that when you do something that truly inspires you, it doesn’t feel like work, it just feels like you being you.

I’m certain David Sedaris would say I could write about the two life threatening illnesses that happened in our family as they are prime examples of things having gone ‘wrong’, but my challenge is that I’m not sure I can write the way I would like to about my cancer journey. I keep attempting it, and I keep failing.

It was a strange experience because my close friends say it appeared like I weathered it with relative ease but I can confirm that was NOT the case. Cancer brought me to my knees and I confronted monsters I didn’t even know existed for me.

The same way I found it easier to be a support system to James after his heart attack and subsequent illness(es) rather than be the patient myself, I find it easier to write about my experience of James’ illness rather than my own illness experience. When I try to write about my journey through cancer I get physical pains in my chest.

Even just the three months when I was awaiting surgery and didn’t have a prognosis were heinous. I could not eat. It felt like my brain and body decided to stop talking. My mouth was dry and when I put food in it, I had to spit it back out. I couldn’t chew it and make it soft to swallow. It was as though my mouth was on strike against my will.

James very thoughtfully bought me some Won Ton soups and I sipped the broth and thought of how many times he had told me stories of families bringing ‘congee’ soup in to the hospital to sick family members. Sometimes I could manage to swallow a couple of the accompanying wontons, but mostly I couldn’t.

No one except my immediate family ever saw me during those months. I did what comes naturally to me in times of intense crisis (I learned). I turtled . I didn’t get dressed. I didn’t write. I didn’t exercise. I didn’t speak to friends. I didn’t eat.

I read anything and everything I could find about breast cancer and reconstructive surgery, and I cried almost continually.

It wasn’t until they weighed me prior to surgery that I realized I barely tipped 100 lbs. My cheekbones stuck out and my skin was sallow and grey. I never understood what it was to feel at rock bottom until I faced the possibility of dying ‘young’ and leaving my children too soon.

I’ve always been a happy sunshiney person and to feel I was losing grip both physically and mentally felt insurmountable. I told James I was so frightened that if cancer didn’t ‘get me’, starvation and despair would.

James asked his psychiatry friends if there was someone they would recommend. There was. And she saved my life.

While I truly love my reconstructive surgeon who is entirely credited with resurrecting my body, and making the arduous and painful process less so, it is my equally amazing psychiatrist with whom I credit saving my mind. My fear of my diagnosis affected my ability to cope, and the medication she recommended and support she provided gave me the reboot I so desperately needed.

I made it through surgery. The goal was to use fat from other places in my body to add some fullness to edges of the breast implants but there wasn’t much there to harvest. James, always keen to make me laugh said he would happily donate the extra he felt he had but that’s not how it works my surgeon said with a wide grin.

After needing to wait a further few weeks, pathology revealed the cancer had been removed entirely by surgery. I was euphoric. Could this journey really be over?! My lovely reconstructive surgeon told me to celebrate, and to EAT.

After almost 3 months of eating so little, I had to ease back into eating and inadvertently created what I jokingly refer to as the “C”arter recovery diet, where two main items started with a ‘C’. It is NOT the diet of champions, but for me it was perfect. I started the morning with a (hot) chocolate that tasted like a melted dairy milk bar, and then in the afternoon I would pick at something very light and have a glass of the only alcohol I ever (rarely) drank: Champagne. Drinking Champagne every afternoon is decadent for certain but if ever there was a time for decadence and celebration, that was it.

After almost a month of recovery, I felt like I literally had a new lease on life. I didn’t need chemo and I didn’t need radiation. And I was being cared for physically and mentally by the two most wonderful doctors. Life was good.

I had started to gain weight and didn’t look so gaunt. Feeling like I had life to enjoy, I wanted to leave the house and engage with the big wide world again. But I needed an outfit. Or maybe it was a costume. I needed a ‘costume of coping.’

I went to the basement and pulled out what I called my ‘skinny clothes’ basket. I put on the jeans and was crestfallen to see the curves I needed to fill them were gone. They were the same curves I had cursed over the years, wanting instead to be a ‘fashionable’ stick person.

James once again rescued me and took me to buy new jeans. Banana Republic supplied me with their smallest size and though nothing could dampen my ‘all-healthy’ glee, I had a new sensitivity, thinking my head and feet looked gigantic. I was a human bobble-head.

Christmas was coming and though I was still lacking the energy to do much, I was excited to have my extended family come for the holidays. James was hilarious in his enthusiastic and dramatic handling of all things Christmas. By his own admission, it looked like Christmas threw up on our house. But I was happy.

Then I saw my surgeon and learned my skin wasn’t healing in an one area where I had lost so much vascular supply. Skin cannot regenerate without adequate blood flow and he told me he needed to take me back to the operating room.

Life was a bit of a blur at that point but I remember feeling so lucky that although there were still so many things that frightened me, anaesthesia was no longer one of them. But it was mid-December and I was worried that if something went wrong and I didn’t come out of surgery, Christmas would be forever different for my family.

Surgery went just fine and I came home ready for Christmas and healing. I caught the C-Dif infection which is no picnic but I still felt like all was finally becoming right with the world. All the super scary stuff was behind me. Plus, I felt like I was looking pretty presentable.

Family arrived and it was a happy scene of holiday jubilation. Hugs abounded and everyone said how well I looked. Then, in that very audible whisper of which only children are capable, my niece, looking at me, asked her mother “Is Auntie Carter going to die?”

My sister in law swiftly clamped her hand over my niece’s mouth and looked like she wanted the floor to open and swallow her.

But I didn’t die. I required further reconstructive surgeries and healing in all ways takes years. The psychological affects of dealing so intimately with mortality has forever changed me.

But I am one of the lucky (unlucky) ones. And what felt like hell on earth was NOTHING compared to the cancer journey of others. For this reason I’m a little reluctant to use the term ‘cancer survivor’, and have often used the phrase ‘my cancer debacle’ which has garnered unintended giggles.

But if the naming of my cancer journey can elicit even a tiny bit of humor, I would consider that an immense win. And if I’m ever offered a seat beside David Sedaris who wants to hear a story of ‘what’s gone wrong’ I’m currently working on other stories to tell. ;0)

Note: I’ve turned comments off on my blog because I was being inundated with spam comments so if you would like to comment please email me. Carter.helliwell@gmail.com :0)